winter blues

Doing good even thru the artic freeze we all felt. Apparently all 50 states had freezing temps one day. The cold makes me ache and hurt. I have to move real slow. I want to sleep a lot. but thats normal. I hope everyone stays safe and warm!

Missing meds is a PAIN!

I accidentally missed my fibro meds one afternoon and didn't take my meds that night. Big mistake! I woke up hurting around 3am and couldn’t get back to sleep. It felt every joint was becoming bedsores. Like my joints were gonna come thru my skin. I got up and took my fibro meds. I hope I never miss my meds again! But I dread the day they don’t work. It seems all meds I take eventually quit working, or my body adjusts to them.

I’m in the middle of moving and having boxes everywhere is killing me. Too much stimuli and stress! Also this move is bittersweet so that’s stressful too. Did I mention stress and stimuli cause pain? =P And moving things around is also painful. And I dread the 2 to 3 days drive I have to do as my move. *sigh*

I found an article about Fibro symptoms you may want to read.

http://www.dailymail.co.uk/health/article-2054759/Fibromyalgia-The-debilitating-condition-leaves-sensitive-sufferers-excruciating-pain.html

Boo is a super service dog!

I spent hours today working on final project for PhotoJ3 class. It was several separate pages. When I put them all in a folder & tried to open it my computer crashes. I’m thinking “no way, that didn’t just happen.” So I try again and my computer crashes again. I try opening the folder a different way. Crash. All that work trapped. >:[

I try to run a malware program but it won’t go in the folder. I had no idea what to do so I right click on the folder and read the options… again… in desperation.

Finally tried search in the folder, not open.  Search finds them so I moved them from search to desk top. Okay, so I won I beat the crash-inducing-folder. I create a new folder to put my work in and try to open it and it crashed the computer again. >:[

Finally I decided “no more folders” and just saved my work individually on my memory card. I will live with it not being organized. I can open the work.

*whew* 

Oh & the best part: when the computer was crashing Boo came over & needed to be held. He calmed me down before I knew I was panicking. He’s a great service dog!

Pains of the Day

This morning I wake up with the usual concern: will my legs hold me up for the three steps to the toilet. And as usual I need to brace myself with my hands on the doorframe and sink to make it. My legs always feel kinda asleep and in pain at the same time every morning.

Then I make my way to my chair at the computer (where I always sit) and notice my hands are hurting more than usual. I know I need my meds as soon as I can but I’m sure I can’t open the bottles so I sit the bag of meds on my desk so I will remember I haven’t took them yet and work on my hands. I open and close my hand and rub them trying to get the over-stuffed painful feeling to ease.

Also I can’t really see. Everything is blurry and out of focus, just like every morning. It lasts a little long than usual and I really hate it.

I know I have to give Boo his meds and I pretty much fall into the floor from my chair because my legs didn’t want to hold me as I sat down. I managed to give Boo his meds without a problem and I wait a while before I risk trying to stand.

With a little help from the chair and I manage to get in the chair. I work on my hands some more until I think I can open medicine bottles. I take my meds and wait for them to kick in.

My calves have hurt since the day before. I didn’t do anything to cause it; just one leg cramped then the other one did later. It makes walking hard so I kinda waddle like a very old woman. I try to make sure I don’t waddle in public no matter how much it hurts. Never act hurt in public. Hide as many of your troubles as you can.

It took a long time before I admitted any troubles on Twitter. My Tweeps were shocked that I wasn’t a healthy, active 20somthing year old. Now I tweet, Facebook and blog and have a website about the Fibromyalgia that changed my life. I do it because I hope it helps someone realize what’s wrong with them or a loved one and get help sooner than I did. 

silent migraine

I feel like I can’t see, but I can see if I stop and concentrate, but that makes my head have a dull throb. There is an aura, but it doesn’t spread or last an hour.

I feel restless yet I know I should go anywhere. I feel sick at my stomach and achy. I want to nap.

I remember the cold chills I had over and over last night. Chills where I couldn’t get warm enough. Flu like chills.

This feels like a silent migraine happening because of a Fibro Flare. *sigh*

Why can’t I have at least more healthy days than sick? But no, my good days are like perfect weather days you get in a year. You get a few in the Spring and a few in the Fall but mostly its too hot, too cold, raining, snowing, ect. There’s almost something unpleasant going on.

That’s how I feel about me and my body, there’s almost always something unpleasant or downright awful going on. 

Living With Fibro

I created a new website as a school project. I decided to make it about Fibromyalgia because it’s something that has changed/destroyed my life more than once. I have all but 2 or 3 of the more than 100 symptoms of Fibro. The doctor said I am a classic example of Fibromyalgia, and I said what a thing to be a classic of.

I hope you will visit and read my website.

Living With Fibro

http://kansasphotography.wix.com/living-with-fibro

migraine

I didn’t really feel like going to class today. I was really tired and sleepy, but I knew we were doing teacher evaluations and I needed to be there. On my way there I started having a migraine. It starts as a spot of prism lights then it spreads out to a string of prism lights blocking all my eyesight in one eye. As soon as I got to class I took my meds and waited. It took 15 to 20 minutes or more to get my vision back. Thanks to getting my meds as it started I didn’t end up in bed (for days) but I do have a headache and feel nauseous.